My Fragile X Community

This social networking site was created to build and foster relationships between the individuals and families of the Fragile X Community.

Contact Information

For information about Fragile X and the National Fragile X Foundation, call 1-800-688-8765 or visit


www.FragileX.org
More Contact Info


Questions about the site? Please email us at myfxadmin@fragilex.org

Please report problems and inappropriate behavior to the Administrator

Latest Activity

Scott Torr updated their profile
9 hours ago
Joseph Timan, William Patterson and Johnaton Peter joined My Fragile X Community
15 hours ago
Amanda Mitchell updated their profile
19 hours ago
19 hours ago
I have raised awareness by Cafe Mom groups and Facebook. Any question people have I welcome them. The more they ask the more we spread the word.
20 hours ago
This is a group to share how you are creating awareness for fragile x syndrome, whether it be stories of how you have shared your story and made a difference, made a video, had a fun raiser, etc. This way we can all get ideas from each other.
20 hours ago
A proud affiliate of the National Fragile X Foundation, the Fragile X Association of Michigan will be hosting the 2010 NFXF International Conference July21-25, 2010
20 hours ago
Angela Cozart Has anyone heard of the new meds that can cure mice with FX? Just wondering what if anything you have heard.
21 hours ago
22 hours ago
22 hours ago
That is a tough one Brenda, but you are right they probably would not show. The way that I am, it would be hard for me not to say anything to them. Maybe if you could have some of the informational flyers on hand at the daycare so that the workers...
23 hours ago
Jayme Haney added 2 blog posts
23 hours ago
 

Announcements

Join the NFXF Online Fundraising Team in the 25 Dollars for 25 Years Campaign!

Have you been looking for a way to support the NFXF, but you’re just too busy to plan an event? We have the solution for you! In honor of our 25th Anniversary, the NFXF is asking volunteers to raise money online in our “25 Dollars for 25 Years” campaign – It’s fast, easy, and totally secure.

Using Firstgiving, you can create an online fundraising page with your own personal touch – include photos and/or a video of your family, and tell your personal story. Then, you can email the link to your family, friends, and colleagues to your page, asking them to donate $25 or more in your honor.

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Check out our Forums!
Our message board/Forums haven't disappeared, they've just been organized into Topics. Please continue to use the Forum section below to discuss with your fellow community members.

Forum

Fragile X Syndrome Issues

Toileting, Behavior, Socialization, Sexuality, Adults, Transitions

42 discussions

Fragile X Syndrome Treatments

Therapies, Medication, Education, Research, Assistive Tech

12 discussions

Fragile X

Cause, Testing, Genetic Information, CGG Repeats, FXS characteristics, Autism, Carriers, FXPOI, FXTAS

3 discussions

The Fragile X Community

LINKS Groups, Mothers, Fathers, Siblings, Carriers, Conferences/Webcasts, Advocacy, Fundraising, Clinics, Quarterly Journal

30 discussions

The Social Network

Questions, Concerns, Suggestions on the site? Are you enjoying what you see? Do you have tips for others? Please let me know here!

3 discussions

Blog Posts

Jackson Lin

What Does Anxiety Feel Like?

Posted by Jackson Lin on November 20, 2009 at 10:23am

Ken Rich

Fun In Mind Happy in Smile...

Posted by Ken Rich on November 20, 2009 at 7:35am

Joseph Timan

Relief from Tension

Posted by Joseph Timan on November 20, 2009 at 12:36am

Jayme Haney

Fragile X Article I got published!

Posted by Jayme Haney on November 19, 2009 at 3:42pm

Jayme Haney

Fragile X Article I got published!

Posted by Jayme Haney on November 19, 2009 at 3:42pm

Photos

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