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www.FragileX.org
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Announcements
Can't make it to Advocacy Day? Want to know what the fuss is about? What it's like? We're going to be doing live updates from our My.FragileX, Twitter, Facebook, and the FragileX.org site. With videos and photos so you can feel like you're right there with us!
Register for the 12th Int'l Fragile X Conference today!
JULY 21 to 25, 2010
Detroit, Michigan
Ain’t No Mountain High Enough
Hosted by the Fragile X Association of Michigan
* Discover the latest research by some of the world's leading Fragile X experts
* Learn new techniques, behavioral interventions and coping strategies
* Connect with researchers clinicians, educators, psychologists and parents
* Get the support you need
* Start a new lifelong friendship and reconnect with old friends
* Sample the best of Motown, including a visit to the historic Henry Ford Museum
We have a new Forum Discussion for the Conference!
What are you doing for the conference?
Forum\Message Boards
Fragile X Syndrome Issues
Toileting, Behavior, Socialization, Sexuality, Adults, Transitions
59 discussions
Fragile X Syndrome Treatments
Therapies, Medication, Education, Research, Assistive Tech, Clinics
14 discussions
Fragile X
Cause, Testing, Genetic Information, CGG Repeats, FXS characteristics, Autism, Carriers, FXPOI, FXTAS
6 discussions
The Fragile X Community
Finding Others, Meet and Greets, LINKS Groups, Mothers, Fathers, Siblings, Conferences/Webcasts, Advocacy, Fundraising
38 discussions
The Social Network
Questions, Concerns, Suggestions on the site? Are you enjoying what you see? Do you have tips for others? Please let me know here!
2 discussions
12th International Fragile X Conference 2010
Discuss everything about conference here! Find a roommate, meet people before you arrive, discuss the upcoming programs, plan meetings.
3 discussions
Blog Posts
testing girls for fragilex
Posted by michelle knighton on February 7, 2010 at 1:30am — 2 Comments
Roche Starts Phase 2 Fragile X Clinical Trial
Posted by Scott Voak on February 1, 2010 at 1:41pm
UPDATED-2/7/10* Additional Information for those attending NFXF Advocacy Day March 2-3
Posted by Jeffrey and Arlene Cohen on January 24, 2010 at 7:30pm — 1 Comment
Advocates to travel to DC still needed for NFXF Advocacy Day March 2-3
Posted by Jeffrey and Arlene Cohen on January 24, 2010 at 9:00am
Trantrums that come and go
Posted by Bonnie on January 20, 2010 at 6:08pm — 2 Comments
Events
February 1
Monday
March 2
Tuesday
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NFXF Advocacy Day 2010
March 2, 2010 at 12pm to March 3, 2010 at 5pm – Washington DC Four Points Sheraton
July 21
Wednesday
Photos
Groups
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FX Assoc of Michigan (FX…
15 members
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Fragile X Advocates
42 members
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Newly Diagnosed Toddlers
14 members
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APSXF - Assoc.Portuguesa…
4 members
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Asociacion Sindrome X Fr…
4 members
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Fragile X Association of…
3 members
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