My Fragile X Community

This social networking site was created to build and foster relationships between the individuals and families of the Fragile X Community.

Contact Information

For information about Fragile X and the National Fragile X Foundation, call 1-800-688-8765 or visit

www.FragileX.org
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Latest Activity

Kaja Sielicka updated their profile

6 hours ago

Erika Bremer replied to Patti Lansaw's discussion 'SON TO BEGIN GENETIC TESTING'

Yes, you could both be carriers. If it's your daugher who is affected, either one of you could have given her FXS (if that is indeed why she is delayed). Almost all of my family members have been tested through Emory University in Atlanta. (For f...

6 hours ago

Kaja Sielicka added a discussion

CZY SĄ TU RODZINY Z POLSKI ???

POCHODZIMY Z POLSKI. JESTEM NOSICIELKĄ FRAX MAM 2 SYNÓW: MARCINA- 6LAT ZDIAGNOZOWANE MA CECHY AUTYSTYCZNE ORAZ FRAX ORAZ BARTOSZA 4LAT- ZDIAGNOZOWANY MA AUTYZM I FRAX. MAM SIOSTRĘ RÓWNIEŻ NOSICIELKĘ KTÓRA MA SYNA LAT 11 RÓWNIEZ Z FRAX :(

6 hours ago

Kaja Sielicka and Christine Beauchamp joined My Fragile X Community

6 hours ago

Christine Beauchamp replied to Patti Lansaw's discussion 'NEW TO SITE - SON TO BEGIN GENETIC TESTING - Anyone have a case like this where there appears to be no mental dysfunction?'

Erika, How did you get all that information? Did your family agree to be tested? My husband has an LD, and depression, but has never been tested. My 5 yr old daughter is being tested for FX. In my family, there is "mental retardation" from a mater...

7 hours ago

Christine Beauchamp replied to Erika Bremer's discussion 'Migraine Headaches'

Have you been to the chiropractor? I used to work for one and many patients swore by it for relief. Apparently not a cure, but maintenance for pain. Hope this helps! Cute boy by the way :)

8 hours ago

Christine Beauchamp replied to doublyblessed's discussion 'Potty Training............................'

We bought the doll that does her buiseness in the potty. They have one with a blue outfit too for boys. Since modeling works well for her, I thought his might do the trick. Every hour Nathalie and her baby would sit on the potty, side by side and ...

8 hours ago

Shannon Gatewood added an event

Lauren's Last Push Fundraiser at www.firstgiving.com/laurengatewood

November 9, 2009 to December 31, 2009

We conducted a fundraiser with our family and friends in August. We designed and sold T-Shirts and raised $750.00. I decided to try to get a little bit more and set a goal of $1000.00 by the end of the year. Thank you in advance to anyone who dona...

12 hours ago

Shannon Gatewood updated their profile

12 hours ago

Jennifer Timmermans replied to Jennifer Timmermans's discussion 'Help Me Please...I am like a horse with the dangling carrot 5 feet in front of me :)'

Wow, thanks so much for speaking with Randi directly. Now at least I know the scoop about the intervention package and look forward to viewing it when it is available. How will she distribute this package? I definitely don't want to miss out. I wi...

13 hours ago

Jeff and Arlene Cohen added 3 blog posts

15 hours ago

Sue Begley left a comment for Marty and Terri Lang and girls

yesterday

Executive Director Blog

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Announcements

Join the NFXF Online Fundraising Team in the 25 Dollars for 25 Years Campaign!

Have you been looking for a way to support the NFXF, but you’re just too busy to plan an event? We have the solution for you! In honor of our 25th Anniversary, the NFXF is asking volunteers to raise money online in our “25 Dollars for 25 Years” campaign – It’s fast, easy, and totally secure.

Using Firstgiving, you can create an online fundraising page with your own personal touch – include photos and/or a video of your family, and tell your personal story. Then, you can email the link to your family, friends, and colleagues to your page, asking them to donate $25 or more in your honor.

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