National Fragile X Foundation News

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Amber replied to Amber's discussion 'That "noise"'
I asked the MD about an antidepressant like zoloft for my son when he was 3 and they said he was too young. That was at Vanderbilt University. I haven't asked about it since. I just deal with the noise. lol
Wednesday
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Amber replied to Amber's discussion 'That "noise"'
Since I started this discussion, my son has matured a lot. He still makes the EEEEEE noise, but it's mostly when he's sleepy and doesn't want to go to sleep. He has started singing A LOT recently. The cutest one he sings is that…
Wednesday
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Lorraine replied to Dilshad Gafurov's discussion 'Advise us how to begin searching for the right doctor, who was a foreign patient, share your experiences of treatment in the United States.'
Dear Dilshad and Feruza,         How wonderful that you were able to bring your son to see Dr. Berry-Kravis!!  Hopefully, it has helped to finally have a reason for your boy's problems. Ask those who know…
Wednesday
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Lorraine replied to beki thorne's discussion 'Waiting for the results - what do you think?'
Dear Beki, I was where you are 9 years ago.  I understand what you are going through.  I have 2 boys - now teens - with FXS and another with ADHD and mild Autism. Hopefully everything went ok, is long over, and forgotten by your son. …
Wednesday

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