My Fragile X Community

Contact Information

For information about Fragile X and the National Fragile X Foundation, call 1-800-688-8765 or visit


www.FragileX.org
More Contact Info


Questions about the site? Please email us at myfxadmin@fragilex.org

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Guidelines, Terms and Responsibilities

Click here for Posting Guidelines
regarding EVENTS, FORUMS, PHOTOS, and BLOG POSTS. Updated 2/8/10
 

Announcements

LIVE UPDATES from Advocacy Day! March 2nd and 3rd
Can't make it to Advocacy Day? Want to know what the fuss is about? What it's like? We're going to be doing live updates from our My.FragileX, Twitter, Facebook, and the FragileX.org site. With videos and photos so you can feel like you're right there with us!

Register for the 12th Int'l Fragile X Conference today!
JULY 21 to 25, 2010
Detroit, Michigan
Ain’t No Mountain High Enough
Hosted by the Fragile X Association of Michigan

* Discover the latest research by some of the world's leading Fragile X experts
* Learn new techniques, behavioral interventions and coping strategies
* Connect with researchers clinicians, educators, psychologists and parents
* Get the support you need
* Start a new lifelong friendship and reconnect with old friends
* Sample the best of Motown, including a visit to the historic Henry Ford Museum

We have a new Forum Discussion for the Conference!
What are you doing for the conference?

Forum\Message Boards

Fragile X Syndrome Issues

Toileting, Behavior, Socialization, Sexuality, Adults, Transitions

59 discussions

Fragile X Syndrome Treatments

Therapies, Medication, Education, Research, Assistive Tech, Clinics

14 discussions

Fragile X

Cause, Testing, Genetic Information, CGG Repeats, FXS characteristics, Autism, Carriers, FXPOI, FXTAS

6 discussions

The Fragile X Community

Finding Others, Meet and Greets, LINKS Groups, Mothers, Fathers, Siblings, Conferences/Webcasts, Advocacy, Fundraising

38 discussions

The Social Network

Questions, Concerns, Suggestions on the site? Are you enjoying what you see? Do you have tips for others? Please let me know here!

2 discussions

12th International Fragile X Conference 2010

Discuss everything about conference here! Find a roommate, meet people before you arrive, discuss the upcoming programs, plan meetings.

3 discussions

Photos

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Latest Activity

Sarah Nordwick, Heather Shortt, Leslie Cheverie and 5 more joined My Fragile X Community
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Angel Armlin is now friends with Alysia Phipps and Heather Shortt
3 hours ago
Angel Armlin added a discussion
We have a 2 1/2 year old son with FX and we are considering IVF/PGD to have another child. They said that it would cost around $20,000.00. Anyone know of financing, loans, grants, etc out there for PGD?
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Grey Calvert and Denys Lyn Davis are now friends
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Jennifer Kelly updated their profile
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Jennifer Kelly and Tammy Smith are now friends
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Heather Shortt added 6 photos
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